One of the real bright spots of our summer so far has been Ryan’s participation in our town street hockey league. As I wrote a couple of weeks ago, we had “the talk” with his coach before the season about Ryan’s diagnosis and challenges. He offered to meet at a coffee shop before the first […]
Read more "(Another) Coach Who Gets It"I have to remind myself to appreciate Ryan’s gifts — the things he not only does better than average, but extraordinarily well. It is hard, especially when he struggles. We spent part of Sunday at the town pool. For some reason, Ryan decided this summer that he no longer really enjoys being in the water. […]
Read more "An Eye for Detail"Yesterday was no fun. Things started well. I actually got to sleep in a bit as I was burning a vacation day during the slowest part of my work year. But I awoke to find Ryan curled up on the couch, covered in blankets, watching a replayed game on NHL Network. And crying. He was […]
Read more "Well That [Stunk]"It has been, at best, an uneven summer. Ryan is managing his anxiety about moving to a new school in the fall. He tolerates camp, although “likes” would be too strong. On off days from camp, he tolerates going to the town pool. On the other side, we continue to deal with challenging behaviors: defiance, […]
Read more "The Signs of Progress Are There"Once in a while there is a moment that crystallizes Ryan’s struggles. When it occurs, even in the middle of a meltdown or challenging behaviors, it’s all we can do to hug him tight and try to tell him it will be OK. Saturday was full of trying moments in our house — with both […]
Read more "Ruined by the Smallest Detail"
Pucks and Puzzle Pieces 